About Us

Ulla-Carin Lindquist had a strong desire for research on Amyotrophic Lateral Sclerosis to be given greater resources. So far there is no effective cure for anyone who has been afflicted. She also wanted the illness to be brought forward into focus – ALS is a totally unknown illness for many people. Ulla-Carin herself suggested therefore that part of the income from the sales of her book ”Rowing Without Oars” should go to a fund to stimulate future research and spread knowledge about ALS.

Soon after Ulla-Carin died in the spring of 2004 Norstedt’s publishing house and Ulla-Carin’s family opened a temporary account to collect money for ALS research. Norstedt’s donated a sum to start off with and the general public sent in gifts. In 2005 a foundation was registered in Ulla-Carin’s name and an effective organisation was developed. The foundation has a so-called 90-account, which means that its activities are under the control of an official authority, the SFI (Stiftelsen för insamlingskontroll). The temporary account was closed as soon as the foundation opened its 90-account and all moneys were transferred to the new account.

Ulla-Carin Lindquist’s Foundation for ALS Research is a completely non-profit-making organisation and no fee is paid to anyone involved in its activities. The board is composed of people who knew Ulla-Carin personally. Administrative business is cared for mainly by volunteers. The foundation has an advisory committee of medical experts to assist them. It consists of physicians who have ALS or neurology as their main speciality.

Finances

How is the foundation financed?
Our work is financed by contributions from the general public. All contributions are welcome, whatever their size. Since everyone working for the foundation does so without payment, costs are kept down.

Who can receive a grant from the fund?
Researchers in Sweden and other countries are welcome to make an application for a grant to finance their research. Please note that no grants will be made until in 2006 at the earliest. When it becomes possible to apply for a grant the application forms and further instructions will be made available on this website.

Who decides who will receive funding?
A panel of medical experts has been asked to administer the fund. They will examine and evaluate applications for grants and suggest candidates. The decisions as to who will be awarded research grants will then be made by the board. On the panel of medical experts are to be found one of Sweden’s foremost experts on ALS, assistant professor Peter M. Andersen, a professor of neurology, Martin Ingvar, and the foundation’s own representative Olle Löfgren, M.D.

When will grants be paid out?
The first payment will be in 2006 at the earliest. Application forms and further instructions will then be found on this website.

How will one know who has been awarded a grant?
When the decisions about the awarding of grants have been made, then this will be announced partly via a press release and partly on this website.

The Board

Ulrica Dahlberg - Chairman
Lawyer

Aina Bergvall
Journalist, SVT (Swedish Television)

Olle Löfgren
Medical doctor. Senior physician in plastic surgery, Karolinska Hospital, Solna

Paulina Von Euler
CEO von Euler & Partners AB

Svante Weyler
Journalist

Karin Axelsson
Deputy Bachelor of Law, Partner, Borggrens & Partners

Mimmi Wernman
Deputy Secretary, Institution for Clinical Neuroscience, Karolinska Institute, Stockholm University

Advisory Panel of Medical Experts

Peter M. Andersen – Assistant professor, senior physician, university lecturer
Institution for Clinical Neuroscience, Umeå University

Martin Ingvar - Professor
Cognitive neurophysiology, Karolinska Institute, Stockholm University

Anne Zachau
Karolinska Institute

Volunteers

Sofie Lindqvist
Ads

Margaret Myers
Translation

Peter Sjöberg
Translation

Emma Zetterholm
Webmaster